Social Media, Patients, and Privacy – #HITsm Chat Topic

We’re excited to share the topic and questions for this week’s #HITsm chat happening Friday, 1/31 at Noon ET (9 AM PT). This week’s chat will be hosted by Candace (@RareCandace) on the topic of “Social Media, Patients, and Privacy”.

Now more than ever, patients are connecting online to share their stories, compare treatments, and connect with others impacted by their condition. Social media has become a valuable tool for exchanging ideas and experiences, which has caught the attention of healthcare companies. The data generated on social media platforms has the ability to influence care, support the approval of new treatments, and change the way companies interact with their targeted audience.

Patients are concerned about the privacy of their data. Recent scrutiny of companies like Facebook and Google has caused great concern among patient communities who use various platforms to connect. In balancing these concerns with the quest for better treatments, access to care, and quality of life, patients and healthcare companies are beginning to work together to address these concerns.

Join us for this week’s #HITsm chat where we’ll be discussing patients use of social media and the related privacy implications.

Topics for this week’s #HITsm Chat:

T1: What social media platforms are the best for patients and companies to connect on? Do privacy settings on certain apps make it more difficult to connect? #HITsm

T2: When building relationships with patient communities, how can we start a conversation centered around the value of patient-generated data and what that data looks like? #HITsm

T3: What are some examples of great engagements between patients and companies looking to use their data? #HITsm

T4: The elephant in the room is privacy. How can patients and healthcare companies collaborate so that everyone is on the same page? #HITsm

T5: What are your top three tips for companies looking to engage with patients and form a data sharing relationship? #HITsm

Bonus: Going forward, what kind of information are companies looking to collect from patients? And for patients, what kind of information would you like to share with healthcare companies? #HITsm

Upcoming #HITsm Chat Schedule
2/7 – Logic, Trust and Anti-Vax Communities
Hosted by Jennifer Michelle, MPH, EMT (@MMSJennifer)

2/14 – Price Transparency – What Does It Really Look Like?
Hosted by Edward Bukstel (@ebukstel)

2/21 – Usability in Health IT
Hosted by Bennett Lauber (@uuAbility)

2/28 – TBD
Hosted by TBD

3/6 – TBD
Hosted by TBD

3/13 – No Chat, but Enjoy #HIMSS20

3/20 – TBD
Hosted by TBD

3/27 – #UnblockHealth
Hosted by Grace Cordovano (@GraceCordovano)

We look forward to learning from the #HITsm community! As always, let us know if you’d like to host a future #HITsm chat or if you know someone you think we should invite to host.

If you’re searching for the latest #HITsm chat, you can always find the latest #HITsm chat and schedule of chats here.

About the author

John Lynn

John Lynn

John Lynn is the Founder of, a network of leading Healthcare IT resources. The flagship blog, Healthcare IT Today, contains over 13,000 articles with over half of the articles written by John. These EMR and Healthcare IT related articles have been viewed over 20 million times.

John manages Healthcare IT Central, the leading career Health IT job board. He also organizes the first of its kind conference and community focused on healthcare marketing, Healthcare and IT Marketing Conference, and a healthcare IT conference,, focused on practical healthcare IT innovation. John is an advisor to multiple healthcare IT companies. John is highly involved in social media, and in addition to his blogs can be found on Twitter: @techguy.