After Death Data Donation – A #hITsm Halloween Horror Chat

We’re excited to share the topic and questions for this week’s #HITsm chat happening Friday, 10/6 at Noon ET (9 AM PT). This week’s chat will be hosted by Regina Holliday (@ReginaHolliday), Founder of #TheWalkingGallery on the topic of “After Death Data Donation.”

Since this month is October (which is heavily associated with death and horror in western cultures) and this week is National HIT week, I thought we would combine the two and talk about death and data donation. Since the 1970’s the autopsy rate in the US has plummeted to less than 10%. When the results of the autopsies are evaluated, in 30% cases the cause of death on the death certificate is a misdiagnosis.

In EHR data collection, the system is designed to capture data of a live patient and data collection stops once a patient dies. Let’s explore these topics in this week’s #hITsm Twitter chat.


Here are the questions that will serve as the framework for this week’s #HITsm chat:
T1: How can we create a system that provides more access to autopsies? #HITSM

T2: How do we collect autopsy data through the EHR for quality control and public health? #HITsm

T3: How do we change a status quo that is willing to look the other way when faced with the reality of poor data about death? #HITsm

T4: How can we make after death data donation a reality for patient families? #HITsm

T5: Some states still have their autopsy data in paper systems. Does ONC need a meaningful use for a meaningful death? #HITsm

Bonus: The CDC did a great job reminding folks about disaster preparedness with their Zombie campaign. Can the do something like that to highlight the need for cause of death data? #HITsm

Upcoming #HITsm Chat Schedule
10/13 – Role of Provider Engagement for Improving Data Accuracy
Hosted by @CAQH

10/20 – Community Sharing Chat
Hosted by the #HITsm Community

10/27 – Aggregating the Patient Perspective and Incorporating It Into Software to Change Healthcare
Hosted by Lisa Davis Budzinski (@lisadbudzinski)

We look forward to learning from the #HITsm community! As always, let us know if you’d like to host a future #HITsm chat or if you know someone you think we should invite to host.

If you’re searching for the latest #HITsm chat, you can always find the latest #HITsm chat and schedule of chats here.

About the author

John Lynn

John Lynn

John Lynn is the Founder of the, a network of leading Healthcare IT resources. The flagship blog, Healthcare IT Today, contains over 13,000 articles with over half of the articles written by John. These EMR and Healthcare IT related articles have been viewed over 20 million times.

John manages Healthcare IT Central, the leading career Health IT job board. He also organizes the first of its kind conference and community focused on healthcare marketing, Healthcare and IT Marketing Conference, and a healthcare IT conference,, focused on practical healthcare IT innovation. John is an advisor to multiple healthcare IT companies. John is highly involved in social media, and in addition to his blogs can be found on Twitter: @techguy.