We’re excited to share the topic and questions for this week’s #HITsm chat happening Friday, 8/25 at Noon ET (9 AM PT). This week’s chat will be hosted by Greg Meyer (@Greg_Meyer93) on the topic of “Consumer Data Liquidity – The Road So Far, The Road Ahead.”
As my summer tour of interoperability forums, lectures, and webinars winds down, patient engagement/data liquidity is arguably the hottest talk in town. This leads me to a time of reflection looking back to my own personal experience over the last 10-15 years (yes, I’m still a fairly young guy) starting with early attempts to access my own family’s records, moving on to witnessing the consumer revolution of Dave deBronkart and Regina Holiday, and finally tracking the progression of HealthIT and public health legislation. We’ve come a long way from the ubiquity of paper and binders and Xerox (oh my) to CDs and PDFs to most recently CDAs, Direct, and FHIR with the latter paving the way for a new breed of apps and tools.
With the lightning speed of change in technology and disruption vis-à-vis consumer devices, one would expect a dramatic shift in the consumer experience over the past 10 years with nirvana in the not too distant future. Contrary to intuitive thinking, we haven’t come as far as we would like to think. Even with legislation and a progression of technology such as C-CDA, OpenNotes, Direct, BlueButton, FHIR, and the promise of apps to bring it all together, pragmatically a lot of same the core broken processes and frustrations still exist today. In July, ONC released a study on the health records request process based on a small sampling of consumers and 50 large health organizations. Although most of the stories include modern technical capabilities, the processes reek of variance and inefficiencies that have persisted since the long lost days of the house call.
Not to put the whole state of affairs in gloom, there is still a potentially bright future not too far ahead. With the convergence of forces from contemporary technical standards and recent legislation like the 21st Century Cures Act, consumer data liquidity is staying in the forefront of public health. And let’s not forget the consumer. It is partly because of the consumer revolution and patients demanding portability of their records that is forcing providers and vendors to open their systems as platforms of accessibility instead of fostering silos and walled gardens.
This week’s chat will explore the progression of health data access from the consumer’s perspective.
Here are the questions that will serve as the framework for this week’s #HITsm chat:
T1: Describe your perception/experiences of consumer data access 10-15 years ago. #HITsm
T2: Contrast your previous experience to today. Is your experience better, worse, or the same? #HITsm
T3: What gaps exist between what is available today (data, apps, networks, etc.) vs what you would like to have? #HITsm
T4: Would you prefer to manage/move your data yourself or expect HealthIT to do it for you. #HITsm
T5: Beyond FHIR, APIs, and apps, what is the future of consumer access and data liquidity? #HITsm
Bonus: Remember “Gimme My DaM Data?” What would be your slogan for consumer access? #HITsm
9/8 – Digital Health Innovation in Pharma
Hosted by Naomi Fried (@naomifried
We look forward to learning from the #HITsm community! As always, let us know if you’d like to host a future #HITsm chat or if you know someone you think we should invite to host.
If you’re searching for the latest #HITsm chat, you can always find the latest #HITsm chat and schedule of chats here.