Patient advocates are planning a “day of action” to generate mass demand for consumer access to medical records in the wake of a plan to roll back the Meaningful Use requirement for engaging patients in their own care.
“I think we need to show the policymakers that they’re not just pushing rope here. We need to show that there’s demand,” former national health IT coordinator Dr. Farzad Mostashari said Sunday afternoon during a preconference symposium on patient engagement before the start of HIMSS15 in Chicago.
While I think that Farzad’s suggestion is noble in idea, my gut tells me that it could backfire in a very significant way. You have to remember that a call for a “day of action” is a double edge sword. If that day goes off successfully, then it could make a great case for why we should be requiring the 5% patient engagement in meaningful use as opposed to the single patient record download that’s just been proposed.
However, the opposite can also happen too. If you call for a day of action and then patients don’t request access to their records, then it will lead many to say “We were right. Patients don’t care about accessing their patient records.” This conclusion would be incredibly damaging to the movement towards patients’ getting access to their medical records.
This would be true even if there were other reasons that the day of action wasn’t successful. For example, if you do some poor PR and marketing of the day of action, then It could very likely fail. I’m talking big boy PR and marketing to really get the word out to patients. Healthcare social media and even all of the attendees at HIMSS won’t have the power to get the word out about this idea in order to really see it take off.
While I think the goal is noble and Farzad is right that patients need to really start demanding their data, I think this idea of a “Day of Action” could end really poorly if we’re not careful about it.